Dystonia Specialist Fort Thomas KY

Dystonia is the third most common movement disorder, next to Parkinson’s disease and Tremor, affecting at least 300,000 people in North America. It is a neurological condition that results in sustained and involuntary contractions of opposing muscles, which leads to spasmodic movements, twisting, and abnormal stances.

Jerry W Conners, MD
(859) 781-2700
40 Grand Ave Ste 200
Fort Thomas, KY
Specialties
Ophthalmology, Neurology
Gender
Male
Education
Medical School: Univ Of Louisville Sch Of Med, Louisville Ky 40202
Graduation Year: 1969
Hospital
Hospital: St Elizabeth Med Ctr-South, Edgewood, Ky; St Luke Hosp -West, Florence, Ky; St Luke Hosp -East, Fort Thomas, Ky

Data Provided by:
Robert Love McLaurin, MD
(513) 369-2498
4th and Vine Sts
Cincinnati, OH
Specialties
Neurological Surgery
Gender
Male
Education
Medical School: Harvard Med Sch, Boston Ma 02115
Graduation Year: 1944

Data Provided by:
Jorge J Jaramillo de la Torre, MD
(513) 558-5387
231 Albert Sabin Way PO Box 670515,
Cincinnati, OH
Specialties
Neurological Surgery
Gender
Male
Languages
English,English
Education
Graduation Year: 2000

Data Provided by:
Dean Hertzler
(513) 584-1000
234 Goodman St
Cincinnati, OH
Specialty
Neurosurgery

Data Provided by:
John Mc Lellan Tew Jr, MD
(513) 584-2214
506 Oak St
Cincinnati, OH
Specialties
Neurological Surgery
Gender
Male
Education
Medical School: Bowman Gray Sch Of Med Of Wake Forest Univ, Winston-Salem Nc 27157
Graduation Year: 1961

Data Provided by:
Charles Victor Abler, DO
(513) 735-0513
655 Eden Park Dr Ste 740
Cincinnati, OH
Specialties
Neurology
Gender
Male
Education
Medical School: Nova Se Univ, Coll Of Osteo Med, Ft Lauderdale Fl 33328
Graduation Year: 1990
Hospital
Hospital: Clermont Mercy Hosp, Batavia, Oh; Mercy Hospital-Anderson, Cincinnati, Oh

Data Provided by:
Sunita V Bhamidipaty, MD
(513) 558-3903
PO Box 670515/Neurosurgery,
Cincinnati, OH
Specialties
Neurological Surgery
Gender
Female
Education
Medical School: George Washington Univ Sch Of Med & Hlth Sci, Washington Dc 20037
Graduation Year: 1999

Data Provided by:
Clarence Junior Louis, MD
3030 Vernon Pl Ste 308
Cincinnati, OH
Specialties
Neurology
Gender
Male
Education
Medical School: Univ Of Louisville Sch Of Med, Louisville Ky 40202
Graduation Year: 1974

Data Provided by:
Mhd Tarek Zakaria
(513) 584-1000
234 Goodman St
Cincinnati, OH
Specialty
Neurology

Data Provided by:
Fredy J Revilla
(513) 475-8730
222 Piedmont Ave
Cincinnati, OH
Specialty
Neurology

Data Provided by:
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Life with Dystonia

Provided by: 

By Ellen L. Weisberg, PhD

Dystonia is the third most common movement disorder, next to Parkinson’s disease and Tremor, affecting at least 300,000 people in North America. It is a neurological condition that results in sustained and involuntary contractions of opposing muscles, which leads to spasmodic movements, twisting, and abnormal stances. Like Parkinson’s disease, dystonia is believed to be due to an abnormality in the basal ganglia of the brain, where movement is controlled.

The symptoms of dystonia first surfaced when I was in the middle of a radio shift, getting ready to record what I thought would be another effortless 30-second broadcast in a string of reports. Halfway through it, the left side of my mouth started twisting inward, making it difficult for me to talk. At the time, I remember wondering if there was something with my delivery style that had- over time- become subtly different… Was my chair too high or too low and I was straining my neck to get to the microphone? Did it have to do with the amount of gesturing I was doing with my hands when I talked?

As time went on, though, the difficulties I was having with my broadcasting increased, and getting the job done comfortably and in a timely fashion was becoming more and more of a struggle. My coworkers thought that maybe I was having sudden “stage fright,” or that it was simply stress that was causing this, since my conversational speech away from the microphone seemed normal. It was only when I saw a neurologist that the situation became clearer: I was diagnosed with a “focal dystonia,” which targets a specific part of the body and usually afflicts people at mid-life. My condition, “task- specific oromandibular dystonia,” causes the jaw to either be clamped shut or held open and is brought on at least in part by repetitive movements. I had been doing two and a half years of daily broadcasting for hours on end, repeating similar phrases and articulating in a way that was different from my regular, away-from-the-microphone speech. I tried to return to broadcasting several times when the symptoms of the dystonia had temporarily quieted down, only to have to quit again when the condition would relapse. The symptoms eventually slipped over into my conversational speech, and there were times they were so debilitating that I thought I’d never be able to hold a normal conversation again.

I had consulted a second neurologist who prescribed Artane, an anticholinergic agent that improves muscle control in Parkinson’s patients. After a brief honeymoon, “fool’s gold”-kind of experience with the drug that lasted only a few days during which my speech seemed more effortless, the Artane lost its effects. My neurologist also tried administering Botox injections on the side of my mouth where muscles were twisting in such a way as to make speaking difficult. However, it was shortly after the injections that the condition relapsed to the point where I could barely talk at all. Continuing...

Author: Ellen L. Weisberg, PhD

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