Dystonia Specialist Chickasha OK

Dystonia is the third most common movement disorder, next to Parkinson’s disease and Tremor, affecting at least 300,000 people in North America. It is a neurological condition that results in sustained and involuntary contractions of opposing muscles, which leads to spasmodic movements, twisting, and abnormal stances.

Ryan C Rahhal
(405) 271-4912
1000 N Lincoln Blvd
Oklahoma City, OK
Specialty
Neurosurgery

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John W Nelson, MD
(405) 271-4113
711 Stanton L Young Blvd Ste 215
Oklahoma City, OK
Specialties
Neurology
Gender
Male
Education
Medical School: In Univ Sch Of Med, Indianapolis In 46202
Graduation Year: 1953
Hospital
Hospital: University Hospital, Oklahoma City, Ok
Group Practice: University Neurologists

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Ellen E Hope, MD
(405) 270-0500
1110 N Classen Blvd Ste 304
Oklahoma City, OK
Specialties
Neurology
Gender
Female
Education
Medical School: Univ Of Ok Coll Of Med, Oklahoma City Ok 73190
Graduation Year: 1979
Hospital
Hospital: St Anthony Hospital, Oklahoma City, Ok; Bone & Joint Hosp, Oklahoma City, Ok
Group Practice: Physical Medicine & Rehab

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Chris Michael Boxell, MD
(918) 749-0762
1919 S Wheeling Ave Ste 600
Tulsa, OK
Specialties
Neurological Surgery
Gender
Male
Education
Medical School: Univ Of Ok Coll Of Med, Oklahoma City Ok 73190
Graduation Year: 1980
Hospital
Hospital: Hillcrest Med Ctr, Tulsa, Ok; St John Med Ctr, Tulsa, Ok
Group Practice: Oklahoma Spine & Brain Inst

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Randall Webb
(918) 488-0990
8110 S Yale Ave
Tulsa, OK
Specialty
Neurosurgery

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John R Smithson Jr, MD
(918) 335-0074
226 SE Debell Ave Bldg A
Bartlesville, OK
Specialties
Neurological Surgery
Gender
Male
Education
Medical School: Univ Of Ok Coll Of Med, Oklahoma City Ok 73190
Graduation Year: 1976

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Bruce Dwayne Pendleton, MD
(580) 242-7030
102 S Van Buren St
Enid, OK
Specialties
Neurological Surgery
Gender
Male
Education
Medical School: Univ Of Ok Coll Of Med, Oklahoma City Ok 73190
Graduation Year: 1980
Hospital
Hospital: Integris Bass Baptist Health C, Enid, Ok; St Marys Mercy Hospital, Enid, Ok
Group Practice: Neurological Surgery Assoc

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Joel Thomas
(405) 271-4912
1000 N Lincoln Blvd
Oklahoma City, OK
Specialty
Neurosurgery

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Kyle Joe Mangels, MD
(918) 749-0762
1919 S Wheeling Ave Ste 600
Tulsa, OK
Specialties
Neurological Surgery
Gender
Male
Education
Medical School: Univ Of Ok Coll Of Med, Oklahoma City Ok 73190
Graduation Year: 1996
Hospital
Hospital: Tulsa Reg Med Ctr, Tulsa, Ok; St Francis Hospital, Tulsa, Ok
Group Practice: Oklahoma Spine & Brain Inst

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Dr.Benjamin G. Benner
(918) 492-7587
6767 South Yale Avenue
Tulsa, OK
Gender
M
Education
Medical School: Baylor Coll Of Med
Year of Graduation: 1973
Speciality
Neurosurgeon
General Information
Accepting New Patients: Yes
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Life with Dystonia

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By Ellen L. Weisberg, PhD

Dystonia is the third most common movement disorder, next to Parkinson’s disease and Tremor, affecting at least 300,000 people in North America. It is a neurological condition that results in sustained and involuntary contractions of opposing muscles, which leads to spasmodic movements, twisting, and abnormal stances. Like Parkinson’s disease, dystonia is believed to be due to an abnormality in the basal ganglia of the brain, where movement is controlled.

The symptoms of dystonia first surfaced when I was in the middle of a radio shift, getting ready to record what I thought would be another effortless 30-second broadcast in a string of reports. Halfway through it, the left side of my mouth started twisting inward, making it difficult for me to talk. At the time, I remember wondering if there was something with my delivery style that had- over time- become subtly different… Was my chair too high or too low and I was straining my neck to get to the microphone? Did it have to do with the amount of gesturing I was doing with my hands when I talked?

As time went on, though, the difficulties I was having with my broadcasting increased, and getting the job done comfortably and in a timely fashion was becoming more and more of a struggle. My coworkers thought that maybe I was having sudden “stage fright,” or that it was simply stress that was causing this, since my conversational speech away from the microphone seemed normal. It was only when I saw a neurologist that the situation became clearer: I was diagnosed with a “focal dystonia,” which targets a specific part of the body and usually afflicts people at mid-life. My condition, “task- specific oromandibular dystonia,” causes the jaw to either be clamped shut or held open and is brought on at least in part by repetitive movements. I had been doing two and a half years of daily broadcasting for hours on end, repeating similar phrases and articulating in a way that was different from my regular, away-from-the-microphone speech. I tried to return to broadcasting several times when the symptoms of the dystonia had temporarily quieted down, only to have to quit again when the condition would relapse. The symptoms eventually slipped over into my conversational speech, and there were times they were so debilitating that I thought I’d never be able to hold a normal conversation again.

I had consulted a second neurologist who prescribed Artane, an anticholinergic agent that improves muscle control in Parkinson’s patients. After a brief honeymoon, “fool’s gold”-kind of experience with the drug that lasted only a few days during which my speech seemed more effortless, the Artane lost its effects. My neurologist also tried administering Botox injections on the side of my mouth where muscles were twisting in such a way as to make speaking difficult. However, it was shortly after the injections that the condition relapsed to the point where I could barely talk at all. Continuing...

Author: Ellen L. Weisberg, PhD

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